A link to her post about the initiative can be found on her site here:
This is M.E. – ME /CFS / Fibro Awareness Day 2014 – Blog Chain
She has requested that each participant answer a series of questions about their illness - either on their own blog, or by emailing the answers to Louise herself, for inclusion on her blog. My contribution follows:
#ThisisME
What is your name & how long have you had ME / CFS?
- Sally Burch & I've had ME for just over two years now!
Where do you live?
- Northern Ireland - in amongst the rolling drumlins of Co.Down.
Age?
- 51 - is that even possible? But my eldest "child" is 25, so I must be maturing a little by now!
5 things about you that the people in your life probably don’t know?
(non-illness related):
- Liquorice is my favourite herbal tea.
- I've grown 50 apple trees from seed, which are now in a hedge at home.
- I can't touch my toes and never have been able to do so.
- I've always thought I'd write a book one day - maybe!
- I love Jelly Babies! (Sorry couldn't think of anything meaningful for the last one!)
5 things about you that the people in your life probably don’t know?
(illness related):
(illness related):
- ME is not about me being tired all the time! Often I am not tired at all!
- I really miss tending to my garden. Even the weeding!
- On average I walk only 240 metres each day. (More & I'll probably crash.)
- I'm not actually sad all the time about being ill! - I'm just different now.
- At last - my ability to daydream is an advantage! LOL
What one thing do you think most people wouldn’t know about living with ME / CFS that you’d like them to know?
- That I don't want to be asked about my illness every time we meet.
What is the most frustrating aspect for you of living with ME / CFS?
- Having to say "No!" to so many things, when I really want to say "Yes!"
Anything else you’d like to say before finishing?
- The ME charity I support is Invest in ME.
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Louise says:
- Any other bloggers who want to join the blog chain, please copy this and fill in your own answers.
- Then email Louise@GetUpAndGoGuru.com so she can link to your blog post in her original post.
I’d Love You To Join In!!
What a great post Sally! It's informative, punchy, straight to the point, and gave me a chuckle too. It's really lovely because a byproduct of #ThisIsME that I hadn't thought of was that others in the #MECFS & Spoonie communities will get to know EACH OTHER better too! It's binding us together in a stronger way, which is really nice.
ReplyDeleteThanks for supporting #ThisIsME. As I'm currently writing a 31 Days To A Better CFS Life blog series, I will definitely be posting a blog on May 12 for the #May12BlogBomb. Whether I can manage the 31 days consecutively is yet to be seen ;-).
This is a great blog post. I love the way you write. It really is a buzz, isn't it - the energy we're creating with #May12BlogBomb and #ThisIsME, among all the other ME/CFS/Fibro Awareness Day campaigns.
Keep Smiling
Louise
Thanks Louise. I'm looking forward to seeing all the other responses written for Awareness Day.
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