ME - Myalgic Encephalomyelitis - not just fatigue.
Views expressed are not to be taken as medical advice.
What an amazing coup to get James Coyne and so many politicians in the one room.Well done!
The Hope committee were well pleased with how our message was received. Thank you for your support.
Big thanks to everybody involved in making this happen. Hopefully this is just the start. Look forward to the video. :)P.S. Not sure myself so you will need to check, but I think it is the MAGENTA trial, not MAJENTA.
Thank you - you are right - editing that now.
Thank you so much for this massive effort, truly a job well done. Word is now getting out about the reality of ME and as the days go by it will be harder to stuff it back under the carpet. Thanks again!! Best Regards, Dave J
Yes Dave - exciting times for sure.
Excellent..thank you all for your incredibly hard work in putting this together..quite a coup to get that many politicians in one room to listen to someone as articulate as Prof Coyne. And thank *you* Sally for this really interesting blog.
This is excellent. Thank you for sharing. It's so good to know there are sensible and credible scientists who are in support of ME patients and are spreading the message about the problems with the PACE study. Well done to you all Donnahttp://www.februarystars.co.uk
Thanks for this write up Sally, v. interesting. Glad to see the 'Lightening Process' is being challenged. That was mentioned to me early in my diagnosis but when I looked into it, it seemed pretty dodgy (and frankly, victim blaming if it didn't work). Thanks to Prof Coyne for his support too - just wonderful.
P.S. What's the MAGENTA trial?
The MAGENTA trial is this one by Ester Crawley http://www.isrctn.com/ISRCTN23962803
Thanks Sally, I'll take a look :)
Really big thanks to James Coyne for what were obviously wonderful talks lifting the lid on this can of worms to expose the deceit and injustice - and to you, Sally, for providing these clearly written highlights.
Cheers - I've been enjoying your astute blog posts recently too. Blogging can be remarkably effective in spreading messages I have discovered. :)
Thank you for this blog post Sally, including us housebound patients in these important events. As always your summary is excellent 💜