Wednesday, 10 February 2016

Sunday, 7 February 2016

#PACEni - Prof James C Coyne talks!

Today is the day James C Coyne will give his first talk in Belfast on the scandal of the PACE trial!

He will be delivering two talks in Northern Ireland in the next few days.  The first is today at 3pm, the second on Tuesday.  I'm just getting organised here to leave the house.

If you are on Twitter then please follow the tag #PACEni for updates.  I will be using my personal account @KeelaToo to tweet directly from the event (assuming of course that all technology works in my favour!).

The committee have been planning this event since Christmas, and suddenly now the day is here.

The second event will happen in Stormont and is aimed at influencing some key decision makers about the plight of the estimated 7000 ME patients in Northern Ireland. Currently we have no consultant led clinic to which GPs can refer ME patients for accurate diagnosis. Naturally we also hope that these talks will have influence further afield too. :)

Much more to say ... will write more soon.  Please follow the live tweeting on #PACEni from 3pm today.