Monday, 29 September 2014

30 Things - Invisible Illness Awareness.

I came across this idea on Invisible Illness and thought it worth ten minutes to complete. Other posts for this are listed on the link, along with instructions on doing your own "30 things". 

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Myalgic Encephalomyelitis

2. I was diagnosed with it in the year: 2013

3. But I had symptoms since: 2012

4. The biggest adjustment I’ve had to make is: Doing so much less.

5. Most people assume: I'm just "tired"!

6. The hardest part about mornings are: Not going out.

7. My favorite medical TV show is: Don't have one.

8. A gadget I couldn’t live without is: Computer

9. The hardest part about nights are: Needing to pee....

10. Each day I take _8_ pills & vitamins. (No comments, please)

11. Regarding alternative treatments I: enjoy drinking kefir.

12. If I had to choose between an invisible illness or visible I would choose: Jury's out.

13. Regarding working and career: Had to give up teaching job.

14. People would be surprised to know: I am still "happy"!

15. The hardest thing to accept about my new reality has been: Less spontaneity

16. Something I never thought I could do with my illness that I did was: Dog Agility from a mobility scooter!

17. The commercials about my illness: don't exist

18. Something I really miss doing since I was diagnosed is: Gardening

19. It was really hard to have to give up: Being physically active.

20. A new hobby I have taken up since my diagnosis is: Blogging

21. If I could have one day of feeling normal again I would: Walk along a stormy beach.

22. My illness has taught me: How to enjoy my own company.

23. Want to know a secret? One thing people say that gets under my skin is: "Are you tired?"

24. But I love it when people: talk about normal stuff - and dogs. ;-)

25. My favorite motto, scripture, quote that gets me through tough times is: One day at a time.

26. When someone is diagnosed I’d like to tell them: Rest is important.

27. Something that has surprised me about living with an illness is: We cope.

28. The nicest thing someone did for me when I wasn’t feeling well was: Hubby bought me an all terrain mobility scooter.

29. I’m involved with Invisible Illness Week because: we matter.

30. The fact that you read this list makes me feel: you care.

So there it is. That's a quick round up of stuff about me. Has anyone else done one of these?


  1. Thank you Sally for your answers. They are probably the same as many of us with this debilitating condition. The hardest things for me were, the loss & grief of previous life and learning to accept this horrendous condition myself, let alone others accepting it!

    1. Yes... learning to accept is a big thing and so hard. Also learning to handle the grief of loved ones and accepting that their grief, despite being about me, is not my fault! xx