Prior to ME
I enjoyed a physically active life. We are lucky to live on a small-holding and keep our own ponies. I rode most weekends with my daughters. We also grew a load of our own fruit and vegetables and preserved them by bottling, drying or freezing the produce. I had a busy teaching job in college and I was also learning how to train my terrier to do agility.
Now that I have MEI am unable to ride, or to teach. The polytunnel stands empty and the garden is overgrown. I have had to reinvent myself and revisit the whole concept of "who I am"!
However, I can still make moments to do things that I love. I use a scooter to walk the dogs for example, and doing this has allowed me to attempt to compete in agility competitions. I also enjoy sewing and making things. (And have blogs for both of these interests.) I am still me - just channeled in a different direction.
Explaining MEExplaining ME is not straight forward. Sometimes I don't really think I understand my limitations myself! You see, some days I feel I can do much more than on others. Yet, DOING that extra stuff, is not a good thing!
Most activities I do, now carry some sort of payback. If I'm lucky, this just means resting up for a few days to get back to my current normal. If I am less lucky, then my "normal" gets reduced. This has happened a few times, so I must now be extra cautious.
However I AM still me, and I don't want the illness ME to be given as the reason that I have to do things differently. So, if we're out together, let's just pretend that I use a scooter because I love doing so, or that you're dropping me to the door of the cafe so I can grab a table! And if I have to go home early, just accept whatever transparent excuse I give you, rather than point out that I might be tiring!
This way, I can pretend that I am still myself, and that ME is not me!
And that is my little ramble for today......
Edit to add:
I wrote about ME and how it affects me, on my sewing blog for ME Awareness Week in May 2013. You can read that piece here: So How does ME affect me?
And for ME Awareness Day 2014 I wrote another post on my Agility blog: Why do I use Wheels?