tag:blogger.com,1999:blog-4941854812083391099.post3512124108327824476..comments2024-03-07T14:33:24.659+00:00Comments on Just ME: Yellow Cards & Psycho-Social TherapiesSally Burchhttp://www.blogger.com/profile/09581869564363992356noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-4941854812083391099.post-17697683756553325102020-10-04T03:45:24.286+01:002020-10-04T03:45:24.286+01:00Do You Need A Powerful Africa Native Doctor? I Mea...Do You Need A Powerful Africa Native Doctor? I Mean A Spiritual Herbalist<br />With Great Spirit Connected To Ancestors. Call or WhatsApp +2349058774809 Dr Obodubu Monday Is A High Voodoo Priest Master. He is a Spell Caster, Native<br />Doctor, Spiritual Herbalist, Powerful Sickle cell Healer, Spiritual<br />Astrologer, Psychic Reader, Multi Guru, Witch Doctor, Priest Of Africa<br />Money Ritual.<br />Have You Been To Native Doctor to Native Doctor Without Any Solution To<br />Your Problems Or Rather Add To it? 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Or Mail Him to<br />babadoctorobodubuspiritualhome@gmail.com For Spiritual Problem Today And<br />You Will Surely<br />Get Solution To All Your Predicament.<br />Email: babadoctorobodubuspiritualhome@gmail.com<br />obodubuhttps://www.blogger.com/profile/00354585393819157785noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-38394759543414807482018-03-13T22:54:48.514+00:002018-03-13T22:54:48.514+00:00Interesting. I had to Google the Orange Guide. h...Interesting. I had to Google the Orange Guide. https://www.gov.uk/government/news/new-essential-orange-and-green-guides-2017-out-now--2<br /><br />It is time that patient complaints of harm from GET & CBT were taken seriously. No reason not to surely!Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-52208163185456755912018-03-13T07:58:55.840+00:002018-03-13T07:58:55.840+00:00Excellent blog "What possible reason could...Excellent blog "What possible reason could there be for protecting these psycho-social therapies from scrutiny?โ Other medical interventions such as pharmaceuticals, medical devices and vaccines are all highly regulated including procedures for harm reporting, rapid recall/cessation of intervention, extensive traceability and full accountability of harms including personal fines and imprisonment if appropriate. All this structure exists already, but psycho-social GET/CBT treatment has none of these patient safety mechanisms in place, as you say...why is that? Psycho-social treatments should be regulated using the same procedures as the MHRA orange guide.<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-80483233970579486922018-03-10T22:15:38.444+00:002018-03-10T22:15:38.444+00:00I need to update the post. My MP Jim Shannon has ...I need to update the post. My MP Jim Shannon has now asked about the Yellow Card system. It will be interesting to see the answers. <br /><br />Please also check my blog post after this one, "Supporting Dr Myhill's PACE Trial complaint to the GMC" where I have given both petitions a mention. :) <br />Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-67514281150036960762018-03-09T13:30:49.095+00:002018-03-09T13:30:49.095+00:00Brilliant!! Could you please send it as an email ...Brilliant!! Could you please send it as an email to all the MPs known to be sympathetic to our cause too? These include: <br /><br />Carol Monaghan, Jim Shannon, Jim Cunningham, Alex Sobel, Rachael Maskell, John Howell, John Lamont, Layla Moran, Alison Thewliss,<br />Nicky Morgan, Luke Pollard, Helen Whately, Paul Blomfield, Vince Cable.<br /><br />You can find their addresses here: http://www.parliament.uk/mps-lords-and-offices/mps/<br /><br />Also I have a related petition, you could help to publicise?<br />https://www.change.org/p/nice-stop-harming-me-cfs-patients-remove-cbt-get-out-of-nice-now<br /><br />And this petition will hopefully help to take down PACE itself, the foundation of CBT and GET:<br />https://www.change.org/p/the-general-medical-council-i-am-showing-my-support-for-dr-myhill-s-complaint-to-the-gmc-about-the-pace-authors<br /><br />Thank you!<br />Robin Brown<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-87194142642426059642018-03-01T12:57:19.707+00:002018-03-01T12:57:19.707+00:00Take care Debra xx
I hope with all that is going ...Take care Debra xx <br />I hope with all that is going on - including Dr Myhill's complaint to the GMC, that things will change soon. It seems surreal that it hasn't already to be honest.<br />Onwards...Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-61878499765627092492018-02-28T15:40:02.892+00:002018-02-28T15:40:02.892+00:00Thank you Sally ๐๐๐ถ great idea the yellow card,...Thank you Sally ๐๐๐ถ great idea the yellow card,. I do have evidence of GET harm.. On my MRI scan, from gentle yoga exercise from my bed, with a yoga expect, said to stop. she was very good with me.. I agree with petition, re. Lots going on atm.. I too am struggling with care package and social care ๐ญ TLC to you All ๐ ๐ ๐ Anonymoushttps://www.blogger.com/profile/00006652672930771097noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-21579952016536087602018-02-28T14:41:22.439+00:002018-02-28T14:41:22.439+00:00I agree re the petition timing. There are enough ...I agree re the petition timing. There are enough of them running right now. And it would probably take quite an effort to get another new one off the ground. Perhaps in a while... but I wasnโt really thinking of one to be honest. :) <br /><br />Lots going on. Letโs hope we can keep momentum up for real change soon. XxSally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-82980920227710855682018-02-28T14:38:41.012+00:002018-02-28T14:38:41.012+00:00I am really disheartened to hear of your situation...I am really disheartened to hear of your situation Budgiefriend. It seems that these therapies are all linked to cost cutting everywhere. I too am horrified that NICE are refusing to address the harms of CBT and GET remaining on their guidelines during the review process. I can see no reason for them to be lift in place - except if NICE are hoping they might remain after the review. And that worries me. As patients we need to report the harms every way we can. I have written to the GMC via Dr Myhillโs campaign. I hope many others will too. <br /><br />Change cannot come soon enough for the many many people with ME like yourself who are being denied appropriate care. I donโt know enough to be able to advise you on a way forwards. If you are on FaceBook there is a good group that helps with benefit applications for ME folk. Itโs called the UK M.E. Chronic Illness Benefits Advice Group. Hope that helps.Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-5179250555043621192018-02-28T14:28:57.696+00:002018-02-28T14:28:57.696+00:00Similar problems world over with these therapies i...Similar problems world over with these therapies it seems Penelope. Hoping that when change comes (as it surely must) that it will happen world over too. ;) Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-43452433761146109132018-02-28T14:25:47.277+00:002018-02-28T14:25:47.277+00:00Thanks Alicia. I think there are probably enough ...Thanks Alicia. I think there are probably enough petitions on the go at the moment. However I am hoping that the question might get asked . I would be good if the Yellow card system extended to these psycho-social therapies wouldnโt it! Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-72379258275473773202018-02-28T09:43:03.518+00:002018-02-28T09:43:03.518+00:00Great - I will contact my MP too.
Re a petition,...Great - I will contact my MP too. <br />Re a petition, There are currently three petitions atm, the one to UK parliament ending on 13 march, the global one started by Robin Brown, and the global Unrest petition by MEaction. It can be very confusing so people dont sign all three as think they have already signed. <br />Could be an idea to wait a bit. <br />Just a thought! <br />Veronica Jonesnoreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-23874226290559756522018-02-27T22:03:32.081+00:002018-02-27T22:03:32.081+00:00I was also harmed by several doctors advising and ...I was also harmed by several doctors advising and scolding me to exercise. I have had many problems with benefit claims, every GP I have seen in my area, and with adult social care which continues to be threatened on the principle that I "can do far more than I am doing and am not trying to exercise and go out regularly. There is a rigid schedule if what and when they give me carers, and with fluctuating severe pain and fatigue and IBS, dizziness, etc. I need to allow myself to say no sometimes. I can't even get a knowledgeable advocate as I am housebound and mostly bed bound, and all charities say they don't provide proactive advocacy for this situation by a volunteer who knows about these types of illnesses and the system. The social care managers are cutting back everyone's care plans in my area, and they see me as getting far more than I deserve. I actually need more, especially practical tasks I can't do. I have no family or friends anywhere close. I know there are thousands like me. It was such a blow to see that the CBT and GET recommendations were going to remain in place for at least a few more years! I think petitions and strategic attention getting programmes in the media really need to ramp up a lot. I struggle every day to keep some hope. The worst is that with the current system of financial contributions for social care, we still have to pay the same amount they determine we can afford out of our benefits income, while having the type and amount of social care we get cut back. So they can deprive me of evening meal preparation and domestic tasks, and I don't have enough money to pay for it privately. And if I decline the social care package they choose to give me, I can't afford to provide enough money from my benefits plus insurance provision for hiring a carer even part time. They have to be accredited and insured and be able also to provide backup in case they can't cover my daily calls. The situation is impossible. I don't know what to do. Now awaiting their requested details from my GP who is totally unsupportive and uninformed. If it goes in my favour that would be an unbelievable miracle. We need urgent, intensified action to get the NICE guidelines changed ASAP. I really hope we can.Budgiefriendhttps://www.blogger.com/profile/15575150424223192408noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-44237735701759620772018-02-27T21:23:43.504+00:002018-02-27T21:23:43.504+00:00Similar problems with poor harm reporting apply in...Similar problems with poor harm reporting apply in Australia. They have just taken action here against pelvic mesh, but they have not changed the system for managing harms from non-drug therapies.Penelopehttps://www.blogger.com/profile/08912228901184686433noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-46706785378145620042018-02-27T19:38:18.616+00:002018-02-27T19:38:18.616+00:00Very good question. I look forward to hearing the ...Very good question. I look forward to hearing the response.Artzstudios1https://www.blogger.com/profile/00306766089526103698noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-66821554103103933432018-02-27T18:49:50.815+00:002018-02-27T18:49:50.815+00:00Well done, Sally. If you start a petition, let me ...Well done, Sally. If you start a petition, let me know. And remember some of us who read your blog are not in the UK - would our signatures help or hurt?ABEhrhardthttps://www.blogger.com/profile/17211038591900883672noreply@blogger.com