tag:blogger.com,1999:blog-4941854812083391099.post1454893506461958060..comments2024-03-07T14:33:24.659+00:00Comments on Just ME: 10 Things ME Patients Need NOW!Sally Burchhttp://www.blogger.com/profile/09581869564363992356noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-4941854812083391099.post-62295601783174245372020-10-04T02:18:00.062+01:002020-10-04T02:18:00.062+01:00Do You Need A Powerful Africa Native Doctor? I Mea...Do You Need A Powerful Africa Native Doctor? I Mean A Spiritual Herbalist<br />With Great Spirit Connected To Ancestors. Call or WhatsApp +2349058774809 Dr Obodubu Monday Is A High Voodoo Priest Master. He is a Spell Caster, Native<br />Doctor, Spiritual Herbalist, Powerful Sickle cell Healer, Spiritual<br />Astrologer, Psychic Reader, Multi Guru, Witch Doctor, Priest Of Africa<br />Money Ritual.<br />Have You Been To Native Doctor to Native Doctor Without Any Solution To<br />Your Problems Or Rather Add To it? 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It Doesn't Matter The<br />Distance Of The Person With The Problems Or Situation, All You Have To Do<br />Is Believe<br />In The Native Obodubu charms Casts That Works, He Always<br />Warns Never To Get His Charms Casts If You Do Not Believe Or Unable To<br />Follow His Instruction.<br />It Is The Assignment Of The Native Doctor Obodubu To Offer<br />Services To Those In Need Of Spiritual Assistance Not Minding The Gravity<br />Of Your Situations Or Distance As Long As Water, Sea, Ocean, Lake, River<br />Sand etc. Are Near You, Then Your Problems Of Life Would Be Controlled<br />Under Your Foot.<br />If You Need Any Spiritual Help On Any of These:<br />Get Your Lover Back<br />Fruit Of The Womb<br />Fibroid<br />Business Boom<br />Financial Breakthrough<br />Get Rich Without Ritual WhatsApp +2349058774809<br />Do As I Say<br />Bad Dream<br />Promise And Fail<br />Epilepsy<br />Spiritual Attack<br />Land/Court Case<br />Mental Disorder<br />Political Appointment<br />Visa Approval<br />Cancer<br />Examination Success<br />Spend And Get Back<br />Good Luck<br />Natural Health<br />Hypertension<br />Diabesity (Diabetic+Obesity<br />Stroke<br />Sickle Cell<br />Impotency<br />Win Court Case<br />Promotion At Work<br />Commanding Tone<br />Protection Ring<br />Marriage Success<br />Love Ring<br />Favour Ring<br />Recover Lost Glory<br />Spiritual Power For Men Of God<br />Travel Success Ring<br />Job Success<br />Lotto/Pool Win And Many More.<br />Make Haste To Call or WhatsApp Dr Obodubu Monday +2349058774809. Or Mail Him to<br />babadoctorobodubuspiritualhome@gmail.com For Spiritual Problem Today And<br />You Will Surely<br />Get Solution To All Your Predicament.<br />Email: babadoctorobodubuspiritualhome@gmail.com<br />obodubuhttps://www.blogger.com/profile/00354585393819157785noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-8447742245470711222018-05-29T16:17:33.547+01:002018-05-29T16:17:33.547+01:00Hello Bradley. Thank you for your comment. I'...Hello Bradley. Thank you for your comment. I'll take a look at your website too. :) Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-18021288053518126362018-05-27T23:19:33.454+01:002018-05-27T23:19:33.454+01:00Hi Sally, Im a fellow CFS'er and I have POTS t...Hi Sally, Im a fellow CFS'er and I have POTS too. I just wanted to say that this is an excellent list you have compiled. Good on you for creating a website to help other people. I did a similar thing over the past few years, here is my page on CFS https://www.towardswellnesscentre.com/chronic-fatigue-syndrome-cfs-me I would love to touch base with you from New Zealand! BradleyBradhttps://www.blogger.com/profile/16693629184698282235noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-57932726982562607582017-03-22T15:42:21.673+00:002017-03-22T15:42:21.673+00:00Apologies I didn't see this post til just now....Apologies I didn't see this post til just now. I think pacing is essential to prevent decline in the condition. I have written a bit about that - if you check the index on the blog you should find a few posts that might help. Sorry to hear your mum has ME, it is a tough journey for the whole family when one falls ill. xxSally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-56656629806401271832017-03-10T15:20:03.214+00:002017-03-10T15:20:03.214+00:00Hi,
My mom was recently diagnosed with M.E. and i...Hi,<br /><br />My mom was recently diagnosed with M.E. and it's been quite a tough journey. I am interested in the idea of 'pacing' and what it entails? I've understood it's a way of tracking your energy levels, but would love to know more and whether it's had any positive effect! MooglieBoohttps://www.blogger.com/profile/03917746782123025082noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-7403768274967411512016-07-22T09:42:12.622+01:002016-07-22T09:42:12.622+01:00Yes that would be good too. However it would need...Yes that would be good too. However it would need to be set up on a regional level under the guidance of a biomedically orientated consultant. :) Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-88295214818890779762016-07-21T22:52:08.245+01:002016-07-21T22:52:08.245+01:00We had an excellent occupational therapist led uni...We had an excellent occupational therapist led unit in Leeds. Don't know what happened but it's now psychiatrist led. Even when it was excellent it was a long way to travel, so I think we need to have provision at primary care level. I think large GP surgeries should have a specialist or groups of smaller surgeries. Other chronic conditions are supported at this level.Anonymoushttps://www.blogger.com/profile/08751465159788976248noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-39420501322045403372015-11-30T00:27:27.189+00:002015-11-30T00:27:27.189+00:00I think the "do as little as possible" a...I think the "do as little as possible" advice is good. It is a total lifestyle change, and a very difficult adjustment because so much is given up. Mind you, I'm not sure UK is ahead of USA, but hopefully change is in the air. ;)Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-30941602318574909842015-11-29T20:10:11.954+00:002015-11-29T20:10:11.954+00:00Looks like my doctor was at least HALF right. She ...Looks like my doctor was at least HALF right. She immediately put me on bed rest and told me I needed an aide (I refuse to have an aide). But she never told me about pacing. Not really anyway. She DID give me some websites to look at, and when I dug deeper, THEN I saw about pacing. She wants me to do as little as absolutely possible. But I want a life... at least one where I am not in bed all day. This was a great list and entry. America is even further behind than anywhere in Europe. It is SO hard to find good care and counseling. Anonymoushttps://www.blogger.com/profile/18361613121510099508noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-80961867080171860372015-04-11T09:39:47.880+01:002015-04-11T09:39:47.880+01:00Yes... without the internet, and other kindly pati...Yes... without the internet, and other kindly patients I would be in a much worse state now! Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-2277089905718321142015-04-03T12:10:10.757+01:002015-04-03T12:10:10.757+01:00Ugh, it is so stressful when doctors are giving di...Ugh, it is so stressful when doctors are giving different (or wrong) advice. I suffer from chronic pain related to a back condition and I can't believe the extreme and contradictory advice I've gotten. Thank heavens for online forums and the ability to talk to fellow sufferers and share advice!<br />#MMWBHMama, My Kid Doesn't Poop Rainbowshttp://pooprainbows.comnoreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-29188085639876604372015-03-29T16:38:23.412+01:002015-03-29T16:38:23.412+01:00Indeed - we all have found that to be the only way...Indeed - we all have found that to be the only way haven't we!! Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-32554946694343453432015-03-27T19:40:25.138+00:002015-03-27T19:40:25.138+00:00A good list Sally. I would add "educate yours...A good list Sally. I would add "educate yourself". Not only about the illness but about support services available and financial supports. Anonymoushttps://www.blogger.com/profile/10231715232446978431noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-79786731389672950602015-03-27T19:21:35.141+00:002015-03-27T19:21:35.141+00:00Yes.. abandoned, misunderstood and neglected... al...Yes.. abandoned, misunderstood and neglected... all adding to the stress of being so ill. We are beyond ready for a change of approach from our medical professionals.Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.comtag:blogger.com,1999:blog-4941854812083391099.post-30042229441487780342015-03-27T10:36:10.516+00:002015-03-27T10:36:10.516+00:00That's a good wish list. When I first became i...That's a good wish list. When I first became ill I didn't have the benefit of the internet and support groups. I had to wait a year before I had any sort of diagnosis and by that time I could have already caused some damage. This was compounded by the hospital consultants who told me to follow a graded exercise programme. I had no one to advise me to the contrary and so even further damage could have been caused. Most of what I've since learnt has been via books and later the internet. I think many feel abandoned, misunderstood and neglected. There is a lot that needs to be changed and I hope that your wish list will one day be a reality for all. French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.com